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           28 March, 2024
 
    

Congenital Dyskeratosis

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CARES Foundation, Inc. (Congenital Adrenal hyperplasia Research, Education and Support) (Popularity: )
http://caresfoundation.org
CARES Foundation is dedicated to supporting individuals and families affected by all forms of congenital adrenal hyperplasia.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Adrenal

Congenital Adrenal Hyperplasia dot Org (Popularity: )
http://www.congenitaladrenalhyperplasia.org
An education and support network for people and families with Congenital Adrenal Hyperplasia. Includes important medical links, FAQ, message board and archives.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Adrenal

Adult Congenital Heart Association (Popularity: )
http://www.achaheart.org/
Information, resources and support for adults with congenital heart disease.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

Adult Congenital Heart Association (Popularity: )
http://www.achaheart.org/
Information about the organization for adults with congenital heart defects, their families and medical professionals. List of support groups plus email to find one in your area.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support (CHERUBS) (Popularity: )
http://www.cherubs-cdh.org/
Provides support and information for the families and medical care providers of children born with Congenital Diaphragmatic Hernia (CDH).
Category:   Health - Conditions and Diseases - Digestive Disorders - Intestinal

Related: Congenital - Congenital Defect - Congenital Hypothyroidism - Congenital Curvature - Congenital Scoliosis


Treatment For Congenital Fibrinogen Deficiency (Popularity: )
http://www.riastap.com
RiaSTAP™ (fibrinogen concentrate [human]) is indicated for the treatment of acute bleeding episodes in patients with congenital fibrinogen deficiency including afibrinogenemia and hypofibrinogenemia.
Category:   Health - Medicine

CongenitalHeartDefects.com (Popularity: )
http://www.congenitalheartdefects.com
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

Heart Disease Online (Popularity: )
http://www.heartdiseaseonline.com
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

Little Hearts (Popularity: )
http://www.littlehearts.net/
A non profit organization that provides support, resources, and hope to families affected by congenital or acquired heart defects. Primarily the New England and surrounding states.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

Canadian Adult Congenital Heart Network (Popularity: )
http://www.cachnet.org/
Provides information for patients and physicians about the care of adults with congenital heart problems.
Category:   Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease

Cherubs (Popularity: )
http://www.cherubs-cdh.org
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Category:   Health - Conditions and Diseases - Rare Disorders

Northeast Pediatric Cardiology Nurses Association (Popularity: )
http://npcna.org/
An organization promoting the health and welfare of infants and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing.
Category:   Health - Nursing - Specialties - Critical Care

Northeast Pediatric Cardiology Nurses Association (Popularity: )
http://npcna.org/
An organization promoting the health and welfare of infants and young adults with acquired or congenital heart disease by enhancing the art and science of pediatric cardiovascular nursing.
Category:   Health - Nursing - Organizations - North America

Cardiac surgery for children and adults with congenital heart disease. (Popularity: )
http://www.cardiacsurgery4kids.com
Why undergo surgery using methods decades old! View/ read the newest and most innovative techniques including robotics and fetal surgery to deal with complex anatomical heart problems.
Category:   Health - Medicine - Surgery - Cardiothoracic

Pediatric Otolaryngology (Popularity: )
http://www.pediatric-ent.com
Western Florida practice that is dedicated to the care of children and adolescents with congenital or acquired ear, nose and throat disorders.
Category:   Health - Medicine - Surgery - Otorhinolaryngology

Joshua Frase Foundation (Popularity: )
http://www.joshuafrase.org
Dedicated to supporting ongoing medical research for myotubular myopathy and other related congenital myopathies.
Category:   Society - Philanthropy - Grants - Grant-Making Foundations

Infinite Number of Sounds (Popularity: )
http://www.infinitenumber.com/
Project creating music in styles as broad and eclectic as the name implies, ranging from rock to electronic to jazz and all things in-between. With news, background, and link to artist mp3.com site for sound files.
Category:   Arts - Music - Styles - Experimental

Ebright Tarp, Kathleen (Popularity: )
http://www.songlegacy.com/
Offers a customized songwriting service. Includes lyrics, audio samples and related links.
Category:   Arts - Music - Songwriting - Songwriters

Madelyn Jordon Fine Art (Popularity: )
http://www.madelynjordonfineart.com/
Scarsdale, NY gallery specializes in American and European works of art, from the 20th century to the contemporary.
Category:   Arts - Visual Arts - Galleries - North America

Weems Gallery (Popularity: )
http://www.weemsgallery.com
Albuquerque, NM gallery featuring decorative Southwest art and crafts.
Category:   Arts - Visual Arts - Galleries - North America
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