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Angelman Syndrome Foundation USA (Popularity:  )
http://www.angelman.org
Information about Angelman Syndrome and the Foundation for doctors and families. Research, activities and groups.
Category:
Health - Conditions and Diseases - Neurological Disorders - Movement Disorders
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Angelman Syndrome Foundation (Popularity: )
http://www.angelman.org
ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.
Category:
Reference - Education - Special Education - Organizations
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ASSERT - Angelman Syndrome Support Education and Research Trust (Popularity: )
http://www.angelmanuk.org
Support for families with a member with Angelman Syndrome in the UK. Newsletters and links to other AS sites.
Category:
Health - Conditions and Diseases - Neurological Disorders - Movement Disorders
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Angelman Syndrome Association Australia (Popularity: )
http://www.angelmansyndrome.org/
Information from the Australian Angelman Syndrome Association.
Category:
Health - Conditions and Diseases - Neurological Disorders - Movement Disorders
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Amber Lynn Cash (Popularity: )
http://www.amberlynncash.com
Dedicated to the memory and legacy of a 5-year-old girl who died of Angelman Syndrome.
Category:
Society - Crime - Murder - In Memoriam
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Related:
Angelman Syndrome Foundation
- Angelman Syndrome
- Angelman
- Angelman Research
- Cure Angelman
Williams Syndrome Foundation (Popularity: )
http://www.wsf.org
Seeks to create or enhance opportunities in education, housing, employment and recreation for people who have Williams Syndrome and other related or similar conditions.
Category:
Health - Conditions and Diseases - Genetic Disorders - Williams Syndrome
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Sjogren's Syndrome Foundation, Inc (Popularity: )
http://www.sjogrens.com/
Information about the foundation and its membership as well as explanation of this disease, links and news and events.
Category:
Health - Conditions and Diseases - Immune Disorders - Auto-Immune
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Julia's Hope--The Sanfilippo Syndrome Medical Research Foundation, Inc. (Popularity: )
http://juliashope.org
A non-profit organization established to promote research toward a cure for Sanfilippo Syndrome, Type A, and related disorders in children.
Category:
Health - Child Health - Organizations
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Cornelia de Lange Syndrome (CdLS) Foundation Outreach (Popularity: )
http://www.cdlsusa.org
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed ...
Category:
Health - Support Groups - Conditions and Diseases - Genetic Disorders
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International Rett Syndrome Association (Popularity: )
http://www.rettsyndrome.org
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children ...
Category:
Reference - Education - Special Education - Organizations
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National Down Syndrome Society (Popularity: )
http://www.ndss.org
The National Down Syndrome Society is a not-for-profit organization that has become the largest non-governmental supporter of Down syndrome research in the United States. Today, NDSS continues to increase public awareness about Down syndrome and discover ...
Category:
Reference - Education - Special Education - Organizations
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Twin to Twin Transfusion Syndrome Foundation (Popularity: )
http://www.tttsfoundation.org
Dedicated to providing educational, emotional and financial support to families and caregivers before, during, and after pregnancies diagnosed with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health andcare ...
Category:
Home - Family - Pregnancy - Multiples
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MaxAppeal (Popularity: )
http://www.maxappeal.org.uk
A British charity that supports children, families and the medical community concerning DiGeorge syndrome, also known as velo-cardial facial syndrome (VCFS) and 22q11 syndrome. Find events, news, info sheets, and a newsletter.
Category:
Health - Conditions and Diseases - Genetic Disorders - Velo-Cardio-Facial Syndrome
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SADS Foundation (Popularity: )
http://www.sads.org
A non-profit organization providing information on Long QT Syndrome
Category:
Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease
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Nail Patella Syndrome Worldwide (Popularity: )
http://www.nailpatella.org
The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.
Category:
Health - Conditions and Diseases - Genetic Disorders - Nail Patella Syndrome
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The NephCure Foundation (Popularity: )
http://www.nephcure.org
Information on research, treatment and coping with Nephrotic Syndrome and FSGS.
Category:
Health - Conditions and Diseases - Genitourinary Disorders - Kidney
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Cardiac Arrhythmias Research and Education Foundation (Popularity: )
http://www.longqt.org
Information and stories about Long QT Syndrome.
Category:
Health - Conditions and Diseases - Cardiovascular Disorders - Heart Disease
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Joubert Syndrome Foundation (Popularity: )
http://www.joubertfoundation.com/
Organization, conferences and contact details. FAQs about the disease, information center and resources.
Category:
Health - Conditions and Diseases - Genetic Disorders - Joubert Syndrome
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Robinow Syndrome Foundation (Popularity: )
http://www.robinow.org/
Details about the organization as well as the disease. Includes general information, a survey, newsletter and photos.
Category:
Health - Conditions and Diseases - Genetic Disorders - Robinow Syndrome
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National Academy for Child Development (Popularity: )
http://www.nacd.org
The National Academy for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including ...
Category:
Reference - Education - Special Education - Organizations
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