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           19 May, 2024
 
    

Fragile X Syndrome

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FRAXA Research Foundation Home Page (Popularity: )
http://www.fraxa.org/
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
Category:   Health - Conditions and Diseases - Genetic Disorders - Fragile X Syndrome

Maryland Fragile X Resource Group (Popularity: )
http://www.mdfragilex.org/
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
Category:   Health - Conditions and Diseases - Genetic Disorders - Fragile X Syndrome

Fragile X Association of Southern California (Popularity: )
http://www.fraxsocal.org
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
Category:   Health - Conditions and Diseases - Genetic Disorders - Fragile X Syndrome

National Academy for Child Development (Popularity: )
http://www.nacd.org
The National Academy for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including ...
Category:   Reference - Education - Special Education - Organizations

Living with Fragile X (Popularity: )
http://fragilex.ca
One family's account of raising 3 children with Fragile X.
Category:   Health - Conditions and Diseases - Genetic Disorders - Fragile X Syndrome

Related: The Fragile - Not Fragile - Fragile - Fragile X - Medically Fragile


National Down Syndrome Society (Popularity: )
http://www.ndss.org
The National Down Syndrome Society is a not-for-profit organization that has become the largest non-governmental supporter of Down syndrome research in the United States. Today, NDSS continues to increase public awareness about Down syndrome and discover ...
Category:   Reference - Education - Special Education - Organizations

International Rett Syndrome Association (Popularity: )
http://www.rettsyndrome.org
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children ...
Category:   Reference - Education - Special Education - Organizations

MaxAppeal (Popularity: )
http://www.maxappeal.org.uk
A British charity that supports children, families and the medical community concerning DiGeorge syndrome, also known as velo-cardial facial syndrome (VCFS) and 22q11 syndrome. Find events, news, info sheets, and a newsletter.
Category:   Health - Conditions and Diseases - Genetic Disorders - Velo-Cardio-Facial Syndrome

Nail Patella Syndrome Worldwide (Popularity: )
http://www.nailpatella.org
The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.
Category:   Health - Conditions and Diseases - Genetic Disorders - Nail Patella Syndrome

Sharing Down Syndrome Arizona (Popularity: )
http://sharingds.org/
Has a listing of Down Syndrome events in their area, also many poems and stories.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Down Syndrome Association of Toronto (Popularity: )
http://dsat.ca/
Information on education and health as it relates to Down Syndrome.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Down's Syndrome Association, London Branch, UK (Popularity: )
http://www.downs-syndrome-london.org.uk
Support group for parents and carers of people with Down's Syndrome.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Syndrome X/Insulin Resistance Information (Popularity: )
http://www.mucus.com
One woman's experiences with Syndrome X and tips on living with this disease.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Pancreas

Prader-Willi Syndrome Association (Popularity: )
http://www.pwsausa.org
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.
Category:   Reference - Education - Special Education - Organizations

Martha Kate Downey (Popularity: )
http://mkdowney.com
Support and information about Asperger's Syndrome, Noonan Syndrome, autism, and other disorders.
Category:   Health - Mental Health - Disorders - Neurodevelopmental

Packing & Storage Tips (Popularity: )
http://www.apexministorage.net
Use sturdy boxes and fill them to capacity to help avoid collapsing or tipping when they are stacked one on top of another. Heavy items should be packed in smaller boxes so that they are easy to lift or carry (i.e., books and tools). Always protect your ...
Category:   Business - Consumer Goods and Services

The Down Syndrome Educational Trust (Popularity: )
http://www.downsed.org/
Based in the United Kingdom. Working to advance the development and education of individuals with Down syndrome
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Connecticut Down Syndrome Congress (Popularity: )
http://www.ctdownsyndrome.org
Dedicated to improving the lives of persons with Down syndrome. Includes information on scholarships, and resources.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Wisconsin Chronic Fatigue Syndrome Association (Popularity: )
http://www.wicfs-me.org/
An information, advocacy and support organization for CFS and Fibromyalgia Syndrome.
Category:   Health - Conditions and Diseases - Neurological Disorders - Chronic Fatigue Syndrome

Northern New England Down Syndrome Congress (Popularity: )
http://nnedsc.org
Non-profit organization of families, professionals, and others who are interested in sharing knowledge and the experience of Down Syndrome.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome
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