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           08 May, 2024
 
    

Personal Stories

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Go Pro Baseball Wise (Popularity: )
http://baseballwise.com/
Book in which baseball people discuss this career with personal stories, tips, and advice to guide those who want to become professional players.
Category:   Shopping - Publications - Books - Sports and Recreation

Cancer Quilt (Popularity: )
http://www.cancerquilt.com
View the photos and personal stories of patients from all walks of life, as related by themselves or the people who love them.
Category:   Health - Conditions and Diseases - Cancer - Coping

AVERT - AIDS Education and Research Trust (Popularity: )
http://www.avert.org
AIDS education and medical research charity. AIDS, HIV transmission, statistics, symptoms, young people's information, condoms, drug treatment, & personal stories are on this site
Category:   Health - Conditions and Diseases - Immune Disorders - Immune Deficiency

ACES Autoimmune Support Group (Popularity: )
http://aces_autoimmune.tripod.com/
Disease information, email list, support group, and personal stories.
Category:   Health - Conditions and Diseases - Immune Disorders - Auto-Immune

Anencephaly Information (Popularity: )
http://www.anencephalie-info.org/
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, and Dutch]
Category:   Health - Conditions and Diseases - Neurological Disorders - Congenital Anomalies

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Rays of Sunshine (Popularity: )
http://hydranencephaly.tripod.com/
Information about hydranencephaly and related conditions. Personal stories of children and families. Equipment, hospice, and medical directory available.
Category:   Health - Conditions and Diseases - Neurological Disorders - Congenital Anomalies

Living For Today, Preparing For Tomorrow (Popularity: )
http://www.livingfortoday.org
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
Category:   Health - Conditions and Diseases - Neurological Disorders - Muscle Diseases

Rett Angels (Popularity: )
http://www.rettangels.org
Rett Syndrome forum and online support group sharing personal stories and information.
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

Debbie Schilling and Tom Bundy (Popularity: )
http://www.bundlings.com/
Personal stories and various links for Rett Syndrome information.
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

MS Watch Canada (Popularity: )
http://www.mswatch.ca
Gives information on events and personal stories.
Category:   Health - Conditions and Diseases - Neurological Disorders - Demyelinating Diseases

Reality Check (Popularity: )
http://www.realitycheck.org.au/
An Australian site dedicated to, and run by, young adults with diabetes. Features information, advice, personal stories, and an open forum.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Pancreas

Welcome To Cushing's Help and Support (Popularity: )
http://www.cushings-help.com/
A site designed by Mary O. - a dediicated Cushing's patient who has set up to provide good information to other patients with similar problems.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Pituitary

Menieres.org (Popularity: )
http://www.menieres.org/
Information and support for those who have Meniere's Disease and those who love them. Includes message boards, chat rooms, journal entries, personal stories, and poetry.
Category:   Health - Conditions and Diseases - Ear, Nose and Throat - Ear

Alex and Matt Pearl (Popularity: )
http://www.alexandmatt.com
Personal stories of two children fighting Fanconi Anemia.
Category:   Health - Conditions and Diseases - Blood Disorders - Anemia

IBS Tales (Popularity: )
http://www.ibstales.com
A site which allows you to read the personal stories of other sufferers and submit your own story online.
Category:   Health - Conditions and Diseases - Digestive Disorders - Intestinal

Dercum's Disease, also known as Adiposis Dolorosa (Popularity: )
http://www.dercum.org/
Symptoms, personal stories, and research that has been done in the study of Dercum's Disease. Includes a medical article describing the disease and references to scores of other articles. Chat room on Tuesday evenings.
Category:   Health - Conditions and Diseases - Skin Disorders - Dercum Disease

Uno Mas Down Syndrome Online (Popularity: )
http://www.unomas21.com/
Supportive online group of parents & friends of kids with Down Syndrome. Message Boards and Personal Stories. Hundreds of photos.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

National PKU News (Popularity: )
http://pkunews.org/
Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.
Category:   Health - Conditions and Diseases - Rare Disorders - Phenylketonuria

Lupus Canada (Popularity: )
http://www.lupuscanada.org
A primary source of information about Lupus including current research with information on the organization, membership, the immune system and extensive links.
Category:   Health - Conditions and Diseases - Musculoskeletal Disorders - Connective Tissue

I Have Scleroderma (Popularity: )
http://www.ihavescleroderma.com/
Web rings with personal stories of people affected by this disease and links to more information.
Category:   Health - Conditions and Diseases - Musculoskeletal Disorders - Connective Tissue
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