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           18 May, 2024
 
    

Prader Willi Syndrome

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Prader-Willi Syndrome Association (Popularity: )
http://www.pwsausa.org
Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members.
Category:   Reference - Education - Special Education - Organizations

The Prader-Willi Syndrome Association (UK) (Popularity: )
http://pwsa.co.uk/
Information and resources about this chromosomal disorder.
Category:   Health - Conditions and Diseases - Genetic Disorders - Prader-Willi Syndrome

Prader-Willi Syndrome Association of South Africa (Popularity: )
http://www.praderwilli.org.za
Informative regarding PWS, its symptoms, causes, prevention and treatment.
Category:   Health - Conditions and Diseases - Genetic Disorders - Prader-Willi Syndrome

Wonderland Summer Camp (Popularity: )
http://www.wonderlandcamp.org/
Missouri camp provides summer programs for adults and children with physical or mental challenges including: MS, multiple dystrophy, cerebral palsy, downs syndrome, prader-willi syndrome.
Category:   Recreation - Camps - Special Needs

PWS Notes (Popularity: )
http://www.pwsnotes.org/
Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
Category:   Health - Conditions and Diseases - Genetic Disorders - Prader-Willi Syndrome

Related: Prader-willi Syndrome - Prader Willi - Prader-willi Research - Willi - Willi Kissmer


Prader-Willi Syndrome Association of Victoria (Australia) (Popularity: )
http://www.pws.asn.au
Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.
Category:   Health - Conditions and Diseases - Genetic Disorders - Prader-Willi Syndrome

National Down Syndrome Society (Popularity: )
http://www.ndss.org
The National Down Syndrome Society is a not-for-profit organization that has become the largest non-governmental supporter of Down syndrome research in the United States. Today, NDSS continues to increase public awareness about Down syndrome and discover ...
Category:   Reference - Education - Special Education - Organizations

International Rett Syndrome Association (Popularity: )
http://www.rettsyndrome.org
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children ...
Category:   Reference - Education - Special Education - Organizations

MaxAppeal (Popularity: )
http://www.maxappeal.org.uk
A British charity that supports children, families and the medical community concerning DiGeorge syndrome, also known as velo-cardial facial syndrome (VCFS) and 22q11 syndrome. Find events, news, info sheets, and a newsletter.
Category:   Health - Conditions and Diseases - Genetic Disorders - Velo-Cardio-Facial Syndrome

Nail Patella Syndrome Worldwide (Popularity: )
http://www.nailpatella.org
The home page of Nail-Patella Syndrome Worldwide, the only non-profit serving the needs of people with Nail-Patella Syndrome. Includes information on the syndrome and the work of the organization.
Category:   Health - Conditions and Diseases - Genetic Disorders - Nail Patella Syndrome

National Academy for Child Development (Popularity: )
http://www.nacd.org
The National Academy for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including ...
Category:   Reference - Education - Special Education - Organizations

Sharing Down Syndrome Arizona (Popularity: )
http://sharingds.org/
Has a listing of Down Syndrome events in their area, also many poems and stories.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Down Syndrome Association of Toronto (Popularity: )
http://dsat.ca/
Information on education and health as it relates to Down Syndrome.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Syndrome X/Insulin Resistance Information (Popularity: )
http://www.mucus.com
One woman's experiences with Syndrome X and tips on living with this disease.
Category:   Health - Conditions and Diseases - Endocrine Disorders - Pancreas

Down's Syndrome Association, London Branch, UK (Popularity: )
http://www.downs-syndrome-london.org.uk
Support group for parents and carers of people with Down's Syndrome.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Martha Kate Downey (Popularity: )
http://mkdowney.com
Support and information about Asperger's Syndrome, Noonan Syndrome, autism, and other disorders.
Category:   Health - Mental Health - Disorders - Neurodevelopmental

Wisconsin Chronic Fatigue Syndrome Association (Popularity: )
http://www.wicfs-me.org/
An information, advocacy and support organization for CFS and Fibromyalgia Syndrome.
Category:   Health - Conditions and Diseases - Neurological Disorders - Chronic Fatigue Syndrome

The Down Syndrome Educational Trust (Popularity: )
http://www.downsed.org/
Based in the United Kingdom. Working to advance the development and education of individuals with Down syndrome
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Connecticut Down Syndrome Congress (Popularity: )
http://www.ctdownsyndrome.org
Dedicated to improving the lives of persons with Down syndrome. Includes information on scholarships, and resources.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Down Syndrome Forum (Popularity: )
http://www.downsyndromeforum.com
Find a community for families associated with down syndrome to share. Includes discussions, web links, surveys and stats.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome
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