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           25 April, 2024
 
    

The Rett Syndrome

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Rett Syndrome Association (UK) (Popularity: )
http://www.rettsyndrome.org.uk/
The Rett Syndrome Association UK, a registered charity, is dedicated to the support of girls and women, together with their families and carers, suffering from this complex neurological disorder, which affects them throughout their lives. Sufferers are ...
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

International Rett Syndrome Association (Popularity: )
http://www.rettsyndrome.org/
Information about Rett Syndrome and the IRSA.
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

Rett Angels (Popularity: )
http://www.rettangels.org
Rett Syndrome forum and online support group sharing personal stories and information.
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

International Rett Syndrome Association (Popularity: )
http://www.rettsyndrome.org
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children ...
Category:   Reference - Education - Special Education - Organizations

The Chronic Syndrome Support Association, Inc. (Popularity: )
http://www.cssa-inc.org/
Educates the general population and health-care professionals on conditions such as fibromyalgia and chronic fatigue syndrome.
Category:   Health - Conditions and Diseases - Musculoskeletal Disorders - Connective Tissue

Related: Rett - Down Syndrome - What Is Down Syndrome - Syndrome - Causes Of Down Syndrome


National Academy for Child Development (Popularity: )
http://www.nacd.org
The National Academy for Child Development, Inc. is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including ...
Category:   Reference - Education - Special Education - Organizations

The Down Syndrome Educational Trust (Popularity: )
http://www.downsed.org/
Based in the United Kingdom. Working to advance the development and education of individuals with Down syndrome
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Stickler Syndrome Support Group (Popularity: )
http://www.stickler.org.uk
Information and support for people affected by Stickler Syndrome. UK-based, but with international links.
Category:   Health - Support Groups - Conditions and Diseases - Facial Differences

The Coffee Nebula (Popularity: )
http://www.coffeenebula.com/
Information about Voyagers Food fixations (mainly coffee), an irrelevance count, the McCoy syndrome, shuttlecraft status, an episode guide, transcripts of the UPN deleted scenes, and a discussion board.
Category:   Arts - Television - Programs - Science Fiction and Fantasy

RettBASE : MECP2 (Popularity: )
http://mecp2.chw.edu.au/
Searchable database of known and novel MECP2 disease-causing mutations and polymorphisms. From the International Rett Syndrome Association.
Category:   Science - Biology - Genetics - Eukaryotic

Julia's Hope--The Sanfilippo Syndrome Medical Research Foundation, Inc. (Popularity: )
http://juliashope.org
A non-profit organization established to promote research toward a cure for Sanfilippo Syndrome, Type A, and related disorders in children.
Category:   Health - Child Health - Organizations

The Myofascial Syndrome Its Causes and Treatment (Popularity: )
http://www.migraineexpert.com
Dr. Brodie-Brockwell. Book explains that dental problems may cause migraines.
Category:   Shopping - Publications - Books - Health

Debbie Schilling and Tom Bundy (Popularity: )
http://www.bundlings.com/
Personal stories and various links for Rett Syndrome information.
Category:   Health - Conditions and Diseases - Neurological Disorders - Rett Syndrome

Autism/PDD (Popularity: )
http://autism.about.com/
A comprehensive site dealing with various issues in autism including research, coping, parenting techniques, early intervention and preparing for adulthood. Provides an active forum, chats, reviewed links, and articles.
Category:   Health - Mental Health - Disorders - Neurodevelopmental

Talk About Curing Autism (Popularity: )
http://www.tacanow.com
Family's story, introduction to autism, biomedical intervention, dietary intervention, and behavioral based therapy, resources for providers.
Category:   Health - Mental Health - Disorders - Neurodevelopmental

Coast Music Therapy (Popularity: )
http://www.coastmusictherapy.com
Specializing in autism and neurodevelopmental disorders. Offers an overview of music therapy, related research, and practical tips on using music to teach skills at home or school. Services provided in San Diego county.
Category:   Health - Mental Health - Counseling Services - Expressive Therapies

Make A Child Smile Organization (Popularity: )
http://www.makeachildsmile.org
Founded in 1998, MACS Organization features different children each month who are suffering from chronic or life-threatening illnesses and asks visitors to send cards/gifts to cheer them up.
Category:   Health - Child Health - Organizations

Down Syndrome in the Broward County Community (Popularity: )
http://www.dsbroward.org/
Local information for parents and families with children who have Down syndrome. Specifically in the Broward County area of the State of Florida.
Category:   Health - Conditions and Diseases - Genetic Disorders - Down Syndrome

Defeating Depression, Beating the Blues (Popularity: )
http://www.healingyourspirit.com
By Pat Webb, licensed professional counselor and author, focusing on the treatment of depression.
Category:   Shopping - Publications - Books - Health

The Balance Within: The Science Connecting Health and Emotions (Popularity: )
http://www.esthersternberg.com
Dr. Esther Sternberg, expert on neural-immune science and author, is a leading researcher exploring the connections between the areas of the brain that control immunity with those that generate feelings and thought.
Category:   Shopping - Publications - Books - Professional and Technical
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